Privacy Policy

Effective December 2, 2019

This Privacy Policy describes how Akebia Therapeutics, Inc. (“we” or “Akebia”) collects, uses, discloses, and otherwise processes information about you when you access or (including AkebiaCares) (collectively, the “Site”).  By accessing the Site, you agree to the processing of your information as described in this Privacy Policy.  For information on the Site’s other Terms of Use, please see  This Privacy Policy does not replace any consent form or notice that you may separately receive in connection with Akebia’s use or sharing of your information.

The Site may contain links to third-party websites and other online content and services that are not owned or controlled by Akebia.  This Privacy Policy does not apply to these third-party properties, and Akebia is not responsible for the content of these properties or for how these properties operate or treat your information.  You should review the privacy policies and terms of use associated with those third-party properties if you decide to access them.  However, we do receive information from certain third-party employment websites with whom we partner, and the terms of this Privacy Policy apply to this information once we receive it in the same manner as these terms apply to information that we collect through the Site.


Information We Collect

When you access the Site, Akebia collects information about you. This includes information that identifies you or that can be used to identify you (“Personal Information”). Some of this information is information you provide voluntarily through your interaction with the Site. The rest of this information is collected automatically when you visit the Site.

  1. Personal Information You Provide

We collect Personal Information that you choose to give us—such as by signing up for our e-mail alerts, e-mailing us, or submitting investment inquiries. Personal Information that we may collect from you includes:

  • Name
  • Contact details (g., personal and/or business e-mail addresses, mailing addresses, telephone numbers)
  • Job title, organizational affiliation, employment history, education history, resume/curriculum vitae, gender, race or ethnicity, and other information related to an investigator-sponsored research proposal or an application for employment (provided to us directly from you or from third-party employment websites)
  • Social Security number (“SSN”), tax classification, and exemption status (through IRS Form W-9) in connection with submitting an investigator-sponsored research proposal
  • Other information that you may provide
  1. Information We Collect Automatically

We automatically collect certain information, including Personal Information, about visitors to the Site.  We do this through the use of cookies, tags, and other similar online tracking technologies.  For more information about cookies, and the extent to which they can be declined by you, please see the section of this Privacy Policy called “Cookie Policy,” below.  Information that we collect automatically includes:

  • Details about the devices that are used to access our Site (such as the IP address and type of operating system and web browser)
  • Dates and times of visits to, and use of, our Site
  • Information about how our Site is used (such as the content that is viewed on our Site and how users navigate between pages on our Site)
  • URLs that refer visitors to our Site
  • Search terms used to reach our Site

How We Use Information We Collect

We may use the information we collect, including Personal Information, to:

  • Communicate information to you about our investigational products, programs, and business, when you sign up for e-mail alerts
  • Respond to your inquiries and requests, including investment and strategic collaboration inquiries
  • Process employment applications and grants and sponsorship applications
  • Improve our Site and related applications
  • Investigate and respond to misuse of our Site or related applications
  • Comply with applicable legal and regulatory requirements, judicial process, and Akebia policies

We may aggregate and/or de-identify the Personal Information we collect to create information that does not identify any individual and use that information for the above-listed purposes and other business purposes.

We may also combine any of the information we collect, including Personal Information, with information from other sources, such as public records or websites, other third parties, or offline interactions with you (for example, by telephone or in person).

How We Share Information We Collect

We may share the information we collect, including Personal Information and any aggregated and/or de-identified information that we create, with third parties for the purposes described above.  These third parties include:

  • Akebia subsidiaries and affiliates
  • Service providers (entities or individuals that perform services on our behalf), such as vendors, consultants, data storage and analytics providers, content providers, and technology providers (including technology support providers, web hosting providers, communications providers, and application developers)
  • Other business partners with whom we collaborate regarding our investigational products and programs, such as scientific advisors, joint venture partners and strategic collaboration partners
  • Legal, regulatory, or other enforcement authorities
  • Other third parties if required to comply with law, regulation, or judicial process or to protect the security, rights, and property of Akebia or of users of the Site

We may also share information we collect or create as part of a purchase, transfer, or sale of Akebia or its assets, such as in a merger or corporate reorganization.  If this occurs, the information will be subject to the policies of the receiving organization.

How We Protect Information We Collect

We use reasonable security measures to protect Personal Information we collect from theft, loss, or other access or use not described in this Privacy Policy.  However, Akebia cannot fully eliminate all security risks to this information due to the nature of the internet.


How Long We Keep Information We Collect

We may keep the information we collect, including Personal Information as long as necessary for the purpose for which it was collected and for as long as allowed by the United States Law and within the United States.


Your Privacy Choices and Rights with Respect to Personal Information

You may update the Personal Information you provide to us through the Site, and your associated communications preferences, at any time by following the instructions on the relevant page of the Site or by contacting us at [email protected].  If you have provided Personal Information to us through a third-party employment website, you should contact that website to update that Personal Information or your communication preferences related to that website.

If you sign up for e-mail alerts, you may unsubscribe from them by following the instructions included in the e-mails.  However, even if you unsubscribe, we may continue to send you other types of e-mail communications, such as about changes in our Site policies.

For information about the choices and rights you have with respect to cookies, please see the section of this Privacy Policy called “Cookie Policy” below.

Users in the European Economic Area have additional choices and rights regarding Akebia’s processing of their Personal Information.  If you are a user in the European Economic Area, please see the section of this Privacy Policy on “Users in the European Economic Area and the United Kingdom” below.


Cookie Policy

Cookies are small amounts of data that your web browser stores on your device at the request of certain websites.  Cookies are then sent back to the originating web domain on your subsequent visits to that domain.  Most web pages contain elements from multiple web domains, so when you visit the website your browser may receive cookies from several sources.

By using the Site, you consent to the use of cookies.  Web browsers may offer users of the Site the ability to disable receiving certain types of cookies; however, if cookies are disabled, some features or functionality of the Site may not work correctly.

Cookies are useful because they allow a website to recognize a user’s device.  Cookies allow you to navigate between pages efficiently, remember preferences, and generally improve the user experience.

You can learn more about the cookies that the Site uses and manage your cookie preferences here:

Please note that Akebia is not responsible for the cookie practices of third-party websites which may be linked to on this Site.


Users in the European Economic Area and the United Kingdom

If you are located in the European Economic Area (“EEA”) or the United Kingdom (“UK”), your Personal Information may be protected by data protection laws in the EEA or UK, such as the European Union General Data Protection Regulation (GDPR).  Akebia will comply with these data protection laws when it uses and shares your Personal Information as described in this Privacy Policy.

When using or sharing your Personal Information as described in this Privacy Policy (including transfers out of the EEA and UK described below), Akebia relies on the following lawful bases, as appropriate:

  • Our legitimate interests, such as operating our business
  • Performance of an employment or other contract with you or pre-contractual measures
  • Compliance with our legal obligations
  • With your consent, when applicable

Akebia is headquartered in the United States, and as a result, your Personal Information will be processed by Akebia in the United States. Akebia may contract with service providers to process your Personal Information on Akebia’s behalf; these service providers may be located outside of the EEA and UK. Data protection laws in the United States or other countries may not offer you the same protections as the laws of the country in which you are residing when your Personal Information is collected.  By using this Site and by submitting your Personal Information to Akebia, you consent to the transfer of your Personal Information to any country and its use and disclosure in accordance with applicable U.S. federal and state laws and with this Privacy Policy.

By submitting an employment application to Akebia through a third-party employment website, you are consenting to Akebia’s processing of your Personal Information (including special categories of data) in connection with Akebia’s consideration of your application and for Akebia’s compliance with applicable laws.

Data protection laws in the EEA and UK may provide you the following legal rights with respect to your Personal Information used and shared by Akebia:

  • To withdraw consent at any time, if we are using and sharing your Personal Information on the basis of consent
  • To access the Personal Information that Akebia has about you
  • To request that Akebia rectify or erase your Personal Information
  • To request that Akebia restrict the way it uses or shares your Personal Information
  • To object to the way Akebia uses or shares your Personal Information
  • To ask Akebia to transfer your Personal Information to someone else
  • To lodge a complaint with a data protection authority in the EEA or UK

Akebia’s ability or obligation to comply with your requests may be limited by applicable law.

To request to exercise one of these rights, please contact us at [email protected].

Akebia’s legal representative in the EU is Akebia Europe Limited, which is established in Ireland.  Akebia Europe Limited can be contacted through Akebia at the mailing and email addresses below.


Children’s Privacy

Akebia’s Site is not directed toward children under the age of 13, and we do not knowingly collect Personal Information from children under the age of 13 through the Site.  If we learn that we have collected Personal Information directly from a child under the age of 13 through the Site, we will delete that information.


Changes to this Privacy Policy

Akebia may change this Privacy Policy from time to time, with changes effective as of the date indicated on the updated policy.  You should check the Site periodically for the latest updates to the Privacy Policy.


Contact Us

Please contact us at [email protected] or  the address, phone, or fax numbers provided below if you have any questions about this Privacy Policy, including about our processing of Personal Information, or if you require assistance in managing your choices.

Akebia Therapeutics, Inc.
245 First Street, Suite 1400
Cambridge, MA 02142

+1 617-871-2098
+1 617-871-2099 (fax)


However, if you are in the EEA or UK and wish to exercise any of the privacy rights described under “Users in the European Economic Area and the United Kingdom” above, please contact [email protected].

Contact Us

Please contact us if you have any questions or concerns about your personal information or require assistance in managing your choices.

Akebia Therapeutics, Inc.
245 First Street, Suite 1400
Cambridge, MA 02142

+1 617-871-2098
+1 617-871-2099 (fax)

For all general inquiries, please contact:

Akebia Therapeutics, Inc.
245 First Street, Suite 1400
Cambridge, MA 02142

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+1 617.871.2098  phone
+1 617.871.2099  fax

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